Zoom & In-person Meetings have resumed!

Next Meeting:​

 

Wednesday, October 15th, 2025 6.30pm via Zoom​​​​​​

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Attention Lyme Disease Community!

 

 

 

 

 

 

October 2025 marks a very significant event.  1045 United Voices from those with Lyme Disease, ME/CFS, Fibromyalgia, and Long Covid have spoken loud and clear, in a survey that was conducted in B.C. and the results are deeply validating and shocking.  

 

The attached link below is a full summary of the report on Healthcare experiences and priorities in B.C with those who have Lyme Disease, Myalgic Encephalitis, Fibromyalgia and Long Covid.  Although this survey was opened to those across Canada, this survey Report focuses on those living in BC.  This report is the largest survey of its kind ever conducted in B.C. with 1,045 respondents and possibly the first of its kind ever done.  This report proves what many living with Complex Chronic Diseases have been saying and that there is a crisis within our Healthcare System.  

 

Our Survey helps support that we are not imagining this!

 

The findings are shocking:

• 93% had negative healthcare experiences

• 75% said their healthcare providers lack basic knowledge about their conditions

• 75% experienced simply not being believed

• 35% reported 11 or more different types of negative experiences

• 93% who used emergency services had negative experiences

The good news? Citing being believed, knowledgeable practitioners, and sufficient 1:1 time and attention, 40% of respondents reported at least one positive experience proving appropriate care is possible with the right support.

 

Why is this Survey so Significant:

 

For too long, people with Complex Chronic Conditions have been told that our experiences were isolated.  That we need to find better healthcare providers.  We need to advocate for ourselves better.  Some have even been told that if your doctor doesn’t think you have this, then they are probably right and you should just accept what they tell you. 

 

This data proves that this type of thinking has never been true.  The data helps validate what we have been through and what we are still going through within our own Healthcare System, which at one time was considered one of the best in the world.  

 

This survey shows British Columbian’s that these problems are at systemic levels, province wide.  They exist whether you access specialty clinics, emergency departments, or community care.  They exist whether you live In Metro Vancouver, the Island, the Interior of BC, or up North.  

 

This Survey is not about us individually.  It is about a broken system that has failed to educate its providers, hold them accountable, allocate appropriate resources and coordinate care for over 347,000 British Columbians with Complex Chronic Diseases.

 

Although only a few questions, this survey was very in-depth and says a lot.  Moving Forward:

 

This survey report is not the finishing line for us, it is just the beginning.  

 

Feel free to share this document with your friends, family, healthcare professionals and your community.

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Click here to see the full 46 page Survey:

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​       Bitten by a Tick? -Please help Dr. Vett Lloyd at Mount Allison University, NB, by completing this brief survey. Dr. Lloyd is a strong supporter of the Lyme Community in Canada and deserves our support.

click here for Survey

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Is your Doctor a Leader or a Follower?

Watch this short video! (click here)

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​Jim Wilson

​We remain truly heartbroken at the death of the founder of Canlyme, Jim Wilson, on June 28, 2024. Jim died surrounded by family after an extended illness. (more here)

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​​​​​​​​​​Our Summer Picnic, Sunday July 14, 2024 at Rocky Point Park,

in beautiful Port Moody was a fantastic success!

And we unexpectedly had live music by the R&B Allstars!

Thanks Darquise for organizing this event! Sadly, our 2025 Summer Picnic was not possible for a variety of reasons.

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Lyme Awareness 2024 Provincial Proclamation  (here)

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Please Donate to BCLyme -thanks! (here)

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If you are a regular member and need help, please contact us:

bclymegroup@gmail.com

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Welcome to all who are interested in Lyme Disease here in BC. We are based in Metro Vancouver and hold regular monthly meetings currently on Zoom. Our meetings are free and open to all and we often feature guest speakers, highlighted videos and the latest news. 

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We share our own experiences plus current news and knowledge about Lyme Disease in BC, across Canada and throughout the world. New members are most welcome!

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The world of Lyme Disease is evolving rapidly in both the medical & political arenas.

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Please note: Our Donation page is up and running. Any amount would be much appreciated. (process minimum: $10.00) Please consider helping out! We never charge dues.